Frequently Asked Questions About Intersex Activism

We are working to replace the current model of intersex treatment based on concealment with a patient-centered alternative. We are not saying that intersex babies are better off left alone; we want there to be social and psychological support for both the parents and intersex children so that they can deal with social difficulties resulting from being different than others. In the long-term, we hope to remove those social barriers through education and raising awareness. See Alice Dreger's chart contrasting the two paradigms.

In general, intersex conditions do not cause the person to feel sick or in pain. However, some intersex conditions are associated with serious health issues, which need to be treated medically. Surgically "correcting" the appearance of intersex genitals will not change these underlying medical needs.

No one knows exactly how many children are born with intersex conditions because of the secrecy and deception surrounding it, and also because there is no concrete boundaries to the definition of "intersex." It is nonetheless estimated that about one in 2,000 children, or five children per day in the United States, are born visibly intersex, prompting early intervention.

Medicine cannot determine the baby's "true sex." For example, chromosomes do not necessarily dictate one's gender identity, as it is obvious from the fact that most people born with androgen insensitivity syndrome live as women despite their XY chromosomes. In other words: science can measure how large a clitoris is, but cannot conclude how large or small it needs to be. That is a social determination.

We won't know the child's gender until she or he is old enough to communicate to us. It is recommended that the child be assigned a gender based on our best prediction, and allow her or him to determine for herself or himself once she or he is old enough to do so. Irreversible surgeries on infants should be avoided in order to give them the widest range of choices when they are older. Performing surgeries will not eliminate the possibility that our prediction is wrong.

Pronouns should not be based on the shape of one's genitalia, but on what the person prefers to be called. For children too young to communicate what her/his preference is, go with the gender assignment parents and doctor agreed on based on their best prediction. Do not call intersex children "it," because it is dehumanizing.

The notion of "five sexes" was popularized by Anne Fausto-Sterling's article "The Five Sexes: Why Male and Female Are Not Enough" published in 1993. In this largely tongue-in-cheek piece, she wrote that three subcategories among "intersex" should be considered as three additional sexes aside from male and female. Unfortunately, the "five sexes" theory does not help people with intersex conditions. In addition to exoticizing and sensationalizing intersex people, the distinction between three additional "sexes"--merm, ferm and herm--are artificial and useless in improving the lives of intersex people. Fausto-Sterling later wrote in Sexing the Body (2000) that she was "no longer advocating" these categories, "even tongue in cheek."

Many people with intersex conditions identify solidly as a man or as a woman, like many non-intersex people. There are some who identify as a member of an alternative gender, like some non-intersex people. While we support everyone's right to define her or his own identities, we do not believe that people with intersex conditions should be expected to be gender-transgressive just because of their condition.

While some people with intersex conditions also identify as transgender, intersex people as a group have a unique set of needs and priorities beyond those shared with trans people. Too often, these unique needs are made invisible or secondary when "intersex" becomes a subcategory of "transgender." For example, people who discuss about intersex in the context of transgender often stress the risk of assigning a "wrong" gender as an argument against intersex genital mutilation, which overlooks the fact that intersex medical treatment is painful and traumatic whether or not one's gender identity happens to match her or his assigned gender. It is for this reason that we prefer to have "intersex" spelled out explicitly rather than have it "included" in "transgender" umbrella.

In biology, "hermaphrodite" means an organism that has both "male" and "female" sets of reproductive organs (like snails and earthworms). In humans, there are no actual "hermaphrodites" in this sense, although doctors have called people with intersex conditions "hermaphrodites" because intersex bodies do not neatly conform to what doctors define as the "normal" male or female bodies. We find the word "hermaphrodite" misleading, mythologizing, and stigmatizing. Although some intersex activists do reclaim and use this term to describe themselves, it is not an appropriate term to refer to intersex people in general. In short, snails are the hermaphrodites; humans are not. Also, please avoid using the word "intersexual" as a noun; we prefer "intersex people" or "people with intersex conditions/experiences."

Join us! In addition to volunteering for or making donations to intersex activist groups such as Intersex Initiative, you can help by talking to your friends and family members about the intersex movement. The idea is that the more people are aware about us, the less likely they will accept surgery as the only option when they or someone they know have an intersex baby. Get your community, church or school group together and show documentary films about intersex (available from Intersex Society of North America) or invite us to present.

Here are some of the recommended resources:

Books

• "Intersex in the Age of Ethics" ed. by Alice Dreger
• "One of Us: Conjoined Twins and the Future of Normal" by Alice Dreger
• "Sexing the Body" by Anne Fausto-Sterling
• "Lessons from the Intersexed" by Suzanne Kessler
• "As Nature Made Him" by John Colapinto

Films

• "Total Patient Care" (Intersex Society of North America)
• One in 2000 (Ajae Clearway)
• "Yellow for Hermaphrodite: Mani's Story" (Greenstone Pictures)
• "BOTH" (Solaris Films)
• "Is it a Boy or a Girl?" (Discovery Channel)

Web Sites

• Intersex Initiative
• Bodies Like Ours
• Intersex Society of North America
• AIS Support Group UK
• MRKH.org